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PXE e-meeting registration
First name
Last name
Email (compulsory)
*
Occupation
Country (compulsory)
*
* compulsory information
I am PXE patient
I am PXE patient´s relative
I am health care professional
Other, what
I agree: Registration data will be handled according to the GDPR regulation of the EU. Registry will be stored in an information system of the hospital organizing the meeting. Information system is secured by log, user name, password, registration of use, and access control. Only members of the local organizing persons will be given access rights. Data will be disposed of latest after 1 year.
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